O.K we are back to continue were we left off...I think...
So we have been living & struggling with the day to day reality of MS...and honestly there is no way to adequately put into words what that is like, cause it is different for everyone.
Fred spent hours on the computer researching MS seeing what was out there and at the beginning of his journey there wasn't much hope!
After a rather nasty relapse he went on Copaxone a drug that is suppose to help the time between relapses...and costs alot of money each month...but there is some financial help from Trillium (thank you Trillium) and from the makers of the drug (thank you drug makers ??:{. For Fred the drug has helped we think, but how do you really know if it is just the natural progression or if it is doing what it is suppose to do ? Fred has had a major relapse on the drug but they (his relapses) are a few years apart and that is what Copaxaone claims to do...but his body & its capacity are still gradually getting worse.
Sooo to sum it all up MS sucks...we were going to name the blog that but thought it might be a little rude for some.
Wednesday, April 27, 2011
Monday, April 25, 2011
The beginning of the Story
Hi...this is our first post and we thought we would give a quick summary of why we "non-bloggers" are "blogging". # 1 Fred says it's better than drinking 3 or 4 bottles of wine today lol !!!
Come on now lets be serious ... 6 years ago our lives changed...drastically... Fred was diagnosed with MS.
He tried as best as he could to maintain working but as a renovator & custom home builder it became increasingly difficult due to the MS "brain fog" and unsteadiness on his feet. (being 3 stories up on a beam & not sure footed is a no-no). He then worked as a renovation consultant but also found that the high stress level of such a job was also playing havoc with his health.
Soooo he slowly had to hand over most of our companies responsibilities to our son...who had been doing his apprenticeship in carpentry with his dad.
He then started the journey of researching and learning about MS for himself...(big big post on this to follow)
He also started to sketch & paint...
Over the next little while we will be posting more of his work on this blog but for now we have put up one of his paintings called "reflections", our blogs name. He has used the medium of art as a way to express the many emotions that living with MS has evoked in a guy more used to being creative with hammer & nails.
But sorry back to why blogging now... Fred has a plan & a desire to go Albany New York to under go the Liberation Treatment (again more on this to follow) and we need help & support...which we have already received from many friends & family members but there is still more that is going on that we wanted to communicate about ... so we are "blogging".
Come on now lets be serious ... 6 years ago our lives changed...drastically... Fred was diagnosed with MS.
He tried as best as he could to maintain working but as a renovator & custom home builder it became increasingly difficult due to the MS "brain fog" and unsteadiness on his feet. (being 3 stories up on a beam & not sure footed is a no-no). He then worked as a renovation consultant but also found that the high stress level of such a job was also playing havoc with his health.
Soooo he slowly had to hand over most of our companies responsibilities to our son...who had been doing his apprenticeship in carpentry with his dad.
He then started the journey of researching and learning about MS for himself...(big big post on this to follow)
He also started to sketch & paint...
Over the next little while we will be posting more of his work on this blog but for now we have put up one of his paintings called "reflections", our blogs name. He has used the medium of art as a way to express the many emotions that living with MS has evoked in a guy more used to being creative with hammer & nails.
But sorry back to why blogging now... Fred has a plan & a desire to go Albany New York to under go the Liberation Treatment (again more on this to follow) and we need help & support...which we have already received from many friends & family members but there is still more that is going on that we wanted to communicate about ... so we are "blogging".
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