Liberation Date confirmed !! We will be heading down to Albany on Sunday July 24th...pre-op on the 25th and the Liberation Treatment procedure will be done on Tuesday July 26th.
It is so amazing to actually have a date...what was once just a thought is becoming a reality !
The two major areas that Fred would love to see some "healing" & or "reversal" in are, first off the relief from the "brain fog" that has been so very challenging to deal with and secondly the constant eye strain & blurry distance vision.
There is of course the fatigue & weakness in his legs that has also been progressing to the point that he was thinking he needed to use a cane for walking. So please continue to keep these things in your prayers :)
Tuesday, June 14, 2011
Saturday, May 28, 2011
Successful Event !!!
WOW...we are so blown away by the love & support we have been receiving, starting when the invitations to the event went out & still continuing !! So many family & friends came out the evening of the event & many of those that could not make have written or emailed their support & encouragement. We feel extremely blessed by all those that have expressed their support !!
We have sent in all the paperwork to the New York Vascular Group and are just awaiting a date...
One of our dear friends has an associate that took her daughter to Clearwater FL for the Liberation Treatment and is having amazing results. One of her big issues was the "Brain Fog" that some people with MS suffer from,...it is GONE !!! This is so encouraging because one of Fred's biggest issue is Brain Fog !!
We have sent in all the paperwork to the New York Vascular Group and are just awaiting a date...
One of our dear friends has an associate that took her daughter to Clearwater FL for the Liberation Treatment and is having amazing results. One of her big issues was the "Brain Fog" that some people with MS suffer from,...it is GONE !!! This is so encouraging because one of Fred's biggest issue is Brain Fog !!
Sunday, May 1, 2011
The Event
Well am going to attempt to put up the invitation to our Event...
What event you might ask ??? Our Liberation Treatment Fundraiser Event !!!
What event you might ask ??? Our Liberation Treatment Fundraiser Event !!!
After much contemplation, prayer & thoughts from many involved in our journey Fred has decided to go to Albany New York to undergo "the procedure". When it was only available overseas & way south of the boarder it was unattainable but now with the Vascular Group of Albany and with the AMAZING help & support of family members & friends it is within our reach !!! SO here is the invitation...
Wednesday, April 27, 2011
The story continues...MS sucks
O.K we are back to continue were we left off...I think...
So we have been living & struggling with the day to day reality of MS...and honestly there is no way to adequately put into words what that is like, cause it is different for everyone.
Fred spent hours on the computer researching MS seeing what was out there and at the beginning of his journey there wasn't much hope!
After a rather nasty relapse he went on Copaxone a drug that is suppose to help the time between relapses...and costs alot of money each month...but there is some financial help from Trillium (thank you Trillium) and from the makers of the drug (thank you drug makers ??:{. For Fred the drug has helped we think, but how do you really know if it is just the natural progression or if it is doing what it is suppose to do ? Fred has had a major relapse on the drug but they (his relapses) are a few years apart and that is what Copaxaone claims to do...but his body & its capacity are still gradually getting worse.
Sooo to sum it all up MS sucks...we were going to name the blog that but thought it might be a little rude for some.
So we have been living & struggling with the day to day reality of MS...and honestly there is no way to adequately put into words what that is like, cause it is different for everyone.
Fred spent hours on the computer researching MS seeing what was out there and at the beginning of his journey there wasn't much hope!
After a rather nasty relapse he went on Copaxone a drug that is suppose to help the time between relapses...and costs alot of money each month...but there is some financial help from Trillium (thank you Trillium) and from the makers of the drug (thank you drug makers ??:{. For Fred the drug has helped we think, but how do you really know if it is just the natural progression or if it is doing what it is suppose to do ? Fred has had a major relapse on the drug but they (his relapses) are a few years apart and that is what Copaxaone claims to do...but his body & its capacity are still gradually getting worse.
Sooo to sum it all up MS sucks...we were going to name the blog that but thought it might be a little rude for some.
Monday, April 25, 2011
The beginning of the Story
Hi...this is our first post and we thought we would give a quick summary of why we "non-bloggers" are "blogging". # 1 Fred says it's better than drinking 3 or 4 bottles of wine today lol !!!
Come on now lets be serious ... 6 years ago our lives changed...drastically... Fred was diagnosed with MS.
He tried as best as he could to maintain working but as a renovator & custom home builder it became increasingly difficult due to the MS "brain fog" and unsteadiness on his feet. (being 3 stories up on a beam & not sure footed is a no-no). He then worked as a renovation consultant but also found that the high stress level of such a job was also playing havoc with his health.
Soooo he slowly had to hand over most of our companies responsibilities to our son...who had been doing his apprenticeship in carpentry with his dad.
He then started the journey of researching and learning about MS for himself...(big big post on this to follow)
He also started to sketch & paint...
Over the next little while we will be posting more of his work on this blog but for now we have put up one of his paintings called "reflections", our blogs name. He has used the medium of art as a way to express the many emotions that living with MS has evoked in a guy more used to being creative with hammer & nails.
But sorry back to why blogging now... Fred has a plan & a desire to go Albany New York to under go the Liberation Treatment (again more on this to follow) and we need help & support...which we have already received from many friends & family members but there is still more that is going on that we wanted to communicate about ... so we are "blogging".
Come on now lets be serious ... 6 years ago our lives changed...drastically... Fred was diagnosed with MS.
He tried as best as he could to maintain working but as a renovator & custom home builder it became increasingly difficult due to the MS "brain fog" and unsteadiness on his feet. (being 3 stories up on a beam & not sure footed is a no-no). He then worked as a renovation consultant but also found that the high stress level of such a job was also playing havoc with his health.
Soooo he slowly had to hand over most of our companies responsibilities to our son...who had been doing his apprenticeship in carpentry with his dad.
He then started the journey of researching and learning about MS for himself...(big big post on this to follow)
He also started to sketch & paint...
Over the next little while we will be posting more of his work on this blog but for now we have put up one of his paintings called "reflections", our blogs name. He has used the medium of art as a way to express the many emotions that living with MS has evoked in a guy more used to being creative with hammer & nails.
But sorry back to why blogging now... Fred has a plan & a desire to go Albany New York to under go the Liberation Treatment (again more on this to follow) and we need help & support...which we have already received from many friends & family members but there is still more that is going on that we wanted to communicate about ... so we are "blogging".
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